Wednesday, September 24, 2014

From the plastic surgeon

Just got home from the plastic surgeon! He removed the sutures from my chest (it felt so weird when they came out!). But anyways, we believe to have reached some what of a break through concerning the reason behind my incision opening! This is a huge praise because we have been constantly asking why and not getting any answers!

After removing the sutures the doctor explained that there is 1 of 2 things happening. Either my body was rejecting the sutures, or my body is rejecting the wiring in my sternum. I have a follow up appointment with that doctor next week. If it was indeed just the sutures my body was rejecting then by next week there should be a significant difference in the healing of the wound. However if there is no change then we will proceed to having a CT scan done to check the wires and my sternum. If it is indeed a problem with the wires then it will not heal until they are removed in which case I will need to travel back to Minnesota to have that taken care of.

Yes it is indeed a lot to take in! However it is a break through on why all of this is happening and for that I am praising the Lord! Do I want to have to be opened back up again most certainly not, however I know the Great Physician I know that He has a plan through it all! If His plan involves my return to Minnesota and an additional surgery then I am ok with that. I will rest in His arms knowing that He has a greater purpose for all of this than I can every imagine! I know this because He said that for the His names sake He allows things to happen in our lives. But He also says He will never leave me nor forsake me. This new turn is for His names sake, He wants to use me, I may not enjoy all of what I go through during that time, but He will be with me through it all!

Thank you for your continued prayers!
I am praising the Lord for this new break through! And I am also praising the Lord that about 5 days ago I took myself off all my pain meds and have only taken on pain pill since then!

Monday, September 22, 2014

3 Weeks Down!

I don't have much of an update but I did just get home from my 3 week check up. It's really encouraging knowing that I have 3 weeks behind me! I can't thank y'all enough for all of your prayers, cards, calls, and support! There are still three main things in which I would ask for your prayers.

First off for my lungs. The doctor did a chest X-ray today, and nothing has changed. The lower portion of my left lung is still collapsed. The doctor still has me on my incentive spirometer every 30minutes with hopes that it will inflate soon.

Secondly my for incision. The over all cleanliness of it is looking much better. The doctor said he believes the infection is cleaning up some. However the opening of the incision it is growing in size. My doctor set an appointment up with a plastic surgeon hoping that he will have some ideas on how to close the hole or at least prevent it from growing any larger. I will meet with that doctor on Wednesday.

Lastly the doctor still has some concern with my blood pressure. I am still having anywhere from 1-10 episodes of low blood pressure, nausea, and near passing out per day. I am on 2 blood pressure medicines currently, but the doctor lowered the dosages on them today in hopes that it will help. The medicines are necessary due to the nature of my surgery, however he is thinking that they are lowering it to much and it is causing the problem. He sent me home with a blood pressure machine to check it a few times a day and see if anything changes.

Other than those things everything seems to be healing up well. I am still struggling with sleeping at night due to back pain but it is getting better.

As far as Kiribati goes the church is going well, God is blessing and they are growing. Please continue to pray for the church as well as the missionaries there. I cannot wait to be able to serve with the Daku family! The doctors said I should be able to leave in 6 months!

Thank you for all of your prayers and support!
Preparing to serve Him on the Equator,
Candace

Monday, September 15, 2014

From the 2 week check up!

Just wanted to take a moment to update. God is good and while there are something's that are not so great there are a great many blessings I have to share. First off I have to say that I am beyond thankful for my wonderful family! I cannot imagine what I would do without them! They have set aside so many things in their lives to help make this situation as smooth as possible for me. My parents have gone above and beyond to make me comfortable, come in the middle of the night when I have had muscle spasms, taken care of my doctors appointments and so much more! I could ask for anything more! I am so thankful for my sister Amanda who willingly put her family and life on hold to be able to travel all the way to Minnesota with me and be there with me as I went through everything. Siting with someone after surgery and trying to patiently work with them, comfort them, and even just hold their hand as tubes are taken in or out isn't easy, but my sister went through it all with me! My brothers have been just as wonderful. It has been such a blessing to see my little brother be my right arm, he helps me up from bed every morning, from the chair every hour. He walks with me everywhere as I am not very stable on my feet, he even picked me up the other day from the kitchen floor. And as much as I don't always enjoy it, he keeps me accountable with all my meds and brings me something to drink every hour. Brandon has been a huge encouragement even though he could not be here with me he has called several times to check on me, and facetimed several times so that my niece and I could talk which lifted my spirits so much!

Secondly I am thankful that of all of these meds they had me on (this is just the morning dose) I was taken off of two of them today!

Thirdly I want to thank The Lord for my church! I am so thankful for all of the love and support I have received from them! I am also so thankful for the technology available to watch livestream services! It lifts my spirits to be able to watch my church service as I am not able to go anywhere for church.




I am just so overwhelmed right now at how good. God has been to me! Thank you so much for all of your cards and calls, they have been helped me so much! I love Gods timing because every time I am having a rough time is when I receive a call or a card. For those of you who have asked my parents address is:

2674 Township Road 1087
Perrysville Ohio 44864

As for the most recent update on me. I am fairing pretty well. My pain has started to even out some as opposed to before when I would have random spasms. I went to the doctor today for my 2 week check up. My incision infection has worsened a great deal and the incision has opened some. We are
still praying that it will heal. The doctor said as of right now there is nothing they can do for the incision so I just need to keep it as clean as it can and pray it will begin to heal. As for my pneumonia they feel as though it has gotten better, however the lower portion of my left lung is collapsed and does not seem to be re-inflating. They are going to have me some back in next week to recheck that lung as well as the progress of the infection. Please also continue to pray for my dizzy/passing out spells. We are not entirely sure why I am having them, but something is causing my blood pressure and pulse to drop very low very fast and it is causing me to nearly pass out. (This was the original reason I ended up in the ER last week. After my shower my blood pressure dropped and I nearly passed out which was followed by vomiting.) Today in the doctors office my BP dropped to 78/64.
I will update y'all on any changes that happen.
Thank you for all of your prayers and support thus far!
Please continue to pray for the Daku and Snyder families as well as the iKiribati people!
Candace



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Wednesday, September 10, 2014

We are leaving the er... doctor says slight pneumonia and slight infection. Two more meds to add to her collection...
Asking for prayer... Candace is having some possible complications. On our way to the hospital.


Sent from my Verizon Wireless 4G LTE smartphone

Tuesday, September 9, 2014

From Home Sweet Home

We are home. The trip was quite long and agonizing, but we have made it safe and sound. I can't express how thankful I am for all of your love, prayers, and support. I am not feeling wonderful but I know it could be worse. I will continue updating as I am recovering, please continue praying.
Candace

Sunday, September 7, 2014

...from the hotel again!

Candace was discharged just before 2. We will head home tomorrow!


Sent from my Verizon Wireless 4G LTE smartphone

...from the courtyard

Sorry... This was yesterday's post that never decided to upload.
 
All the chest tubes are gone. The wound vac is gone. She is down to one iv line, but no medications going to it. Got to walk outside today. Hoping to be discharged tomorrow. O2 sats are still dropping slightly when she sleeps.

Friday, September 5, 2014

...from a regular room

Well, the doctors finally got Candace's pain under control. They also found out that her pain meds were causing the nausea. Now that they have that under control, she is feeling much better (as you can see from the "hand puppet" finger O2 sensor.) She also was able to take a shower and wear her own clothes today, which just made her day! Hoping to get her last chest tube out today.
 

Thursday, September 4, 2014

Apparently nobody took pictures today... Sorry. Candace had to use an oxygen mask last night because she wasn't getting enough oxygen. She was able to get one of her chest tubes and the bulk of her IVs out today and was moved to a regular room. She has also been on a few walks throughout the day.

Sent from my iPad

Wednesday, September 3, 2014

Late update. Sorry for keeping you. Candace is doing pretty well from a medical standpoint. The echo came back good. She is still running a low-grade temp (which is to be expected) and says she is burning up, even though the AC is as cold as they can get it and the rest of us are freezing :) Her chest tubes are causing significant pain, which the doctors are trying to manage. Because of this, she was kept in the ICU one more night. When we left around 615 to catch the shuttle back to the hotel she had finally fallen asleep. Unfortunately, when she woke up the pain was significantly worse. It must be somewhat better now though, because a little while ago she sent us this picture of herself walking the hallway in front of her room for the first time.



Appologies for not updating anymore yesterday. I spent the rest of the day in her room except when we went to dinner. A little more details on the results of her surgery: Once they got in there, not only did they not need to replace her valve, her tricuspid was not in nearly as bad shape as they thought! They did have to make some corrections on placement to get it working properly, but they did not have to "create" the third leaflet like they thought (most Epstein patients have at least one leaflet that didn't form properly and they have to fold and reform it). She did have one small hole that they didn't know about until they got inside, but it was an easy fix. They were also able to successfully remove part of her heart that had become enlarged so that it would be the proper size again. The surgery ended up taking only around 2-1/2 hours instead of the 4 they thought it would, so that was much easier and quicker than her procedure the other day.

They were able to take her off the sedatives around 3:30 yesterday afternoon and she woke up several minutes later. She really didn't like the cpap tube and fought to wake up enough to get it out. She was very drowsy though.  It took several hours before she was breathing on her own enough to take it out. They were hoping she would be sitting on the side of the bed late last night, but she was in a lot of pain and started getting nauseated after we left for dinner.

This morning at 6:45 she texted us this picture of herself sitting in a chair. She said she was in the chair for several hours and it was the most painful thing she has ever done (and that's saying a lot for miss clumsy who is constantly injuring herself). :)

Dad went over there early this morning to see her while the rest of us got some much-needed sleep. Even though yesterday was not nearly as long as Friday and Saturday, we are starting to run on fumes. Hopefully now that the big stressers are out of the way the rest of the trip will be a little easier. I know my parents are both much more relaxed since the surgery.

The last thing we heard is that they were taking her for an echocardiogram to make sure her blood flow through the heart has been corrected. We will be heading over there in a few minutes. As always, will keep you posted! Thanks again for the love and support. Nicole Garissi is heading into town this week to visit. You have all been so supportive, and I know both Candace and my parents have really felt and appreciated all the love.

Tuesday, September 2, 2014

...from the heart with PRAISE!

She's Done!!! A whole lot sooner than expected and not as much reconstruction as they thought. They are suturing her now. She did well. They will move her to ICU and watch her for a few hours before we are able to go up. This evening they will take her off the sedatives and allow her to wake up before removing the breathing tube. PTL for answered prayer and His guiding hand in the whole situation. We could feel your prayers. Thanks!

Waiting during her procedure...

Doctor Duraney (sp) telling us the good news!
The OR nurse communicator called a few minutes ago. Candace went to the operating room at 17 after and is now hooked up to the bypass machine (to keep her blood flowing to the rest of her body without going through the heart.)



The image shows how a heart-lung bypass machine works during surgery.
(Picture from National Heart Lung and Blood Institute: http://www.nhlbi.nih.gov/health/health-topics/topics/hs/during.html)
They have wheeled her to preop. She was well prayed over before they took her back, and I'm sure you are all praying for her now and throughout the day as well. Thanks for the prayers. I know she appreciates it as well as my parents. Will keep you posted as we hear more from the nurse communicator throughout her surgery (though I'm not sure what pictures I will share for that). :) It will be a long day of waiting, so please keep us in your prayers too.

Update: She has entered the OR.

Monday, September 1, 2014

From the hotel room with updates...

Open heart surgery is tomorrow. PTL we don't have to be there until 7am! Pastor Dave Kohler from my parents' church come up this evening with one of their deacons. Bro. Dale Money from First Baptist and Bearing Precious Seed in Milford also flew in today. We had a good time of fellowship with them all at Red Lobster. Now Candace is eating what she can before her midnight fasting begins!